Norrie is the disease that keeps on giving and not in a good way. I remember when we learned of Will’s visual impairment, we were...

Hello again! It's been sometime since my last blog. Work and life in general has been crazy and kept me from having the time to write. ...

I whole heartedly believe that a stay at home mom is like working 2 full time jobs! it's 24/7 with no true breaks. Juggling tasks is...

When your baby is little their needs are constant. Feedings, naps, diapers, play, not to mention laundry and dishes. I remember...

The life of a mom with a disabled child is never ending. Just when it seems things are stable and you settle into day to day life...

I have always loved the Holidays and in particular Christmas. I always say Christmas is the only good thing about winter, after that...

Until now I’ve never met or known a fully blind person. I’m sure that is the same for many of us. It’s not something you come across in...

I have been wanting to get Will to the zoo for a while now and just haven’t been able to find the time on a day that wasn’t too hot. ...

It's been a while since I last sat down to write. I easily get caught up in the day to day living, but every so often the day to day...

WOW it's been a long time since I sat down and started writing. Life has had us on our toes here. Someone turned 1!!!!! We had a 1 in a...

If you've visited my resource page you've likely seen the link to the free white cane through National Federation of the Blind. We just...

Will and I have recently been going out and about more. It has become apparent quickly that he is no longer remarked as just a cute baby....

Jennifer Mastrianni I live in USA My sons name is Adam Sorge. He just turned two on April fourth! His diagnosis is Norries Disease. He...

have recently been learning what vestibular input is. Will has developed a lot of habits recently that have had me concerned. I have...

I have been so unmotivated recently to write. Everyday recently has been filled with one appointment or another. Regardless of what the...

Any new experience with an infant presents it's challenges! When your infant is blind you have to invest more time and energy in the how...

While as a woman we all have some form of body issues I had never had huge issues with my body before pregnancy. Nothing changes your...

First rule of thumb is that almost everything can be a toy. Look around your house and trust me you'll find toys you'd never think of. ...

When children as young as Will have these types of eye problems is one of a few things. It can be from being born premature, trauma at...

When you find out your baby has little to no vision you have to rethink the way you do everything! Babies take in their environment 80%...